tag:blogger.com,1999:blog-6974129.post114361606670418401..comments2023-09-07T17:22:13.625-04:00Comments on chastity reVisited: Quality of Life is Determined by Whom?Lindahttp://www.blogger.com/profile/05714225694607303543noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6974129.post-1144524573778737952006-04-08T15:29:00.000-04:002006-04-08T15:29:00.000-04:00You have a beautiful family. May God be with you a...You have a beautiful family. May God be with you and strengthen you all.Lindahttps://www.blogger.com/profile/05714225694607303543noreply@blogger.comtag:blogger.com,1999:blog-6974129.post-1144523279735690462006-04-08T15:07:00.000-04:002006-04-08T15:07:00.000-04:00I can't even believe that we have to deal with the...I can't even believe that we have to deal with these sorts of people. NO parent dealing with these sorts of decisions should have to battle with doctors, most of whom probably know less about SMA than the parents do. Shame on any doctor that thinks he/she has a solution to this problem other than simply perfecting the cure, b/c we already know what it is! SMA was recently determined, by an international board of neuromuscular experts, to be THE MOST CUREABLE of the nueromuscular diseases. Why don't these docs spend the money they put towards court costs to good use and make an SMA cure a realitY?! It aggrevates the crud out of me. I know b/c I am the father of three beautiful girls, two of which have suffered from SMA type 1. One has passed on into eternity and the other is still with us. http://the-lee-family.usNatehttps://www.blogger.com/profile/07015631742777447805noreply@blogger.com